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I have AS

Hi you guys!

I know it has been awhile since I wrote, but it has been hard to write for me.  One I am not sure what to share there is a lot I want to share but not sure how or where to start.  Second I am actually having issues with my hands.  Yes my hands, my DNA mutations is acting up again you can say and it is really messing with my skeletal system.  So I was recently diagnosed with Ankylosing spondylitis or for short AS.  The definition you will find online:  is an inflammatory disease that, over time, can cause some of the vertebrae in your spine to fuse. Not a big deal...(sarcasm there.)  So I am losing mobility in my body.  I decided to share the news with the world last week, but for the people that have been paying attention (just kidding) the people close to me it is not news.  I have been known to using wheelchairs and canes when needed.  It is just getting to a point where they are needed more and more.  Also I did not want to face the fact that, I am going to go through this process.  I was not ready to face it.  But after being in so much pain, I finally told my doctor to do the testing that needed to be done to find out what was really wrong.  She then gave me the news.  I took it pretty bad at first, I had hope that she was going to say it was nothing...I know that sounds crazy.  Having days where my husband has to take me upstairs and I can't go out with the kids. I wanted to hear it was all in my head.  Because when you got so much stuff going on you sometimes wonder if it is in your head? 

 But it was not in my head, it was real.  Because of the pain, and loss of mobility we started some meds to try to help.  I mean the pain is bad, I feel like I am becoming a rock and my spine feels like it's on fire!!! It really sucks but I try not to complain I just try to make the people around me aware of how shitty I feel so they don't think I don't want to be part of an activity I just really can't.  Ones the pills stop working I will start getting injections on my hips and spine to help when it gets worse we are looking at possible surgery.  My bones are pretty much getting stuck together so they will need to try to adjust that.  I haven't really looked into that, because I am still trying to understand the condition and see what is the best way to take care of myself. 

 I did become depressed the first week after the news, also because I lost my car in that week.  (that is another story.)  But with the love and support of family/friends and lots of prayer I feel very hopeful and optimistic.  Just like my old job used to say "nothing is a big deal unless you make it." So this won't be a big deal, many more things will happen. And many other things have happened this year and yet I am still here. So if you are having a bad day remember you are here because you are meant to be here!  It is up to you what you will make of it. 

Comments

  1. UnknownOctober 3, 2018 at 3:08 AM

    Your strong my friend and thier is nothing like having your family support. I Love your blog.

    ReplyDelete

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